We don’t have an update on Seth yet. The night was spent controlling his BP and resting this morning. They said yesterday that they will do MRI today but they haven’t shared what time.
In the meantime, here is an update on our cousin Ellis. Thank you for keeping him in your prayers. -HC
6:15pm update – After seeing the EEG results from this morning after his seizure, Dr Hwang and Dr Teh advised us to move Ellis to the pediatric ICU (PICU) at General Hospital (GH). Ellis needs a continuous EEG which Island Hospital could not provide, plus both of these doctors are going on leave in the next couple of days. We agreed with their decision and Ellis was transferred by ambulance around 3:30pm – It was surreal to be riding in the front seat of an ambulance with the sirens on (unsurprisingly if you know Malaysia, cars were still not stopping). The drive between hospitals only took 2 minutes.
GH definitely has a very different vibe and has its pros and cons. The pros are all favorable for Ellis – here they have dedicated pediatric intensivists, several pediatric neurologists on hand, and the specialized equipment that he needed. The cons are that the PICU is an open ward and has strict visiting hours, and we can only see him from 12:30 – 1:45pm and 4:30pm-7:30pm.
We met with Dr Teh and the pediatric Intensivist, Dr Amani, when we arrived. Their plan is for Ellis to be fully sedated to rest his brain for the next 48 hours, continuously monitoring him on the EEG. They are going to be more aggressive in seizure control and put him on 4 different seizure meds. They are waiting from some prior test results from Island Hospital to come in to decide whether to begin immunotherapy. The question to be answered is why his seizures are still happening although his infection is gone.
Pray for:
- true rest for Ellis’s brain
- Seizures to stop
- his brain to heal and the injured neurons to stop firing. His EEG indicates too much activity specifically in the left lobe of his brain.
This was not the news we expected to have today. It’s been a difficult afternoon. The verses on my mind have been Psalm 139- “Where can I go from your Spirit? Where can I flee from your presence? If I go up to the heavens, you are there; if I make my bed in the depths, you are there. If I rise on the wings of the dawn, if I settle on the far side of the sea, even there your hand will guide me, your right hand will hold me fast.” — Today was far too much for us to do in our own strength and I know God’s presence was with us and felt that He truly followed us here.
-Erin
photo of Seth and Ellis
