4pm update – Ellis was nearing the end of his full-scale 6-hour EEG when I came to visit this afternoon. The doctor I spoke to said that Ellis hasn’t had any clinical seizures since yesterday (meaning they aren’t physically visible).
Unfortunately it being Sunday, we have to wait until the neurologist comes in tomorrow morning to see the results of that scan to see if there have been seizures occurring or not, and then proceed from there (for a CT scan and lumbar puncture).
Ellis is looking ok, he is stable, and the nurses are taking very good care of him.
Pray for:
-Another seizure-free 24 hours.
-Tomorrow (Monday) will be a stressful and important day. We will meet with the neurologist and get the latest EEG report to see if we can proceed with the lumbar puncture.
-Pray for the answers we need for Ellis to be treated accordingly.
We’ve been seeing the same moms and dads come and visit their own children here for the past few days. There are 10 beds in the PICU, and most of them are full today. There’s now a 9 year old girl across from Ellis. The parents of the 2-month-old baby next to Ellis are from Myanmar. The picture I am attaching is of myself and Watie, the mom of the 1 year- old, Aliana, who I mentioned here before. She had surgery for a heart condition two weeks ago when her heart stopped, and the doctors are concerned about brain damage. Watie is from Kedah (a neighbouring state) and is staying at the hospital dormitory to be with Aliana. I’ve been surprised how far my rudimentary Bahasa has gotten me but Google translate has helped a lot too. I told her a few days ago that I would pray for her daughter and that I pray to Jesus who is a healer. She said she would pray for Ellis also. I stopped by Aliana’s bed this afternoon and asked Watie if I could pray for her then too, which we both did together. No mom or dad ever expects or wants to sit in those waiting room chairs. But God comforts us so that we can comfort others. We all really have nothing else we can do anyway except wait and pray. I am so grateful in a new and unexpected way now how we don’t have to be stingy with prayer. I’m not going to hoard all your prayers for Ellis because I know that God can heal him and his cousin Seth, Aliana, and all of the kids in the PICU – with just a word. So today we can pray for all of the above and all of the children (and their parents) there, knowing that God knows and loves them all extravagantly.
-Erin
Leave a Reply