Thursday, August 28, 2025 Hope for Rough Days

It’s been a rough week for Seth.

Mon – The fluid collecting at the catheter site still hadn’t subsided. The drain had been closed since they didn’t want the cerebral spinal fluid draining. Mobility was limited and he was exhausted and still had no appetite.

Tues – The drain that was placed in the fluid pocket on Friday was removed to prevent a source of contamination or infection.

Wed – A blood patch procedure was done in which a small amount of his blood was injected into the epidural space to naturally form a clot to seal the leak. (Fun fact: The epidural space provides a cushion for the spinal cord and protects it from injury-pix attached). The fluid that had accumulated was drained to create a new baseline if it should leak again. Unfortunately, this meant that he was on 24 hour bed rest only laying flat down and could only be fed through his tube.

Thurs – It was a LONG 24 hours for all of us but at 11 am Seth was in his wheelchair and we went straight outside for some sun. He also got his left full arm cast off and now only has elbow and hand splints to wear. He has been in multiple casts for both arms for over a month. OT is impressed with the progress his arms, wrists and fingers have made.

Craig Hospital has a Peer Mentor Program in which former patients come to visit, tell their story and encourage others that are currently going through their own difficult journey of healing inside and out. We have met some wonderful people. One such young woman who sustained a brain injury from an accident 12 years ago painted Seth a lovely picture of a desert scene (and of course included a bunny!) 12 years ago, her life’s plan to help others changed in a way that no one expected. But her purpose didn’t change and she continues to make a difference— in a different and more beautiful way.

Attached is her stunning picture and heartfelt message of HOPE for us and really to anyone going through the rough days.

Specific prayers today: That the blood patch continues to be successful and there are no more issues with the Baclofen pump.

-Darcy