Last night: Seth is more medically stable. He has one nurse that takes care of him and another patient instead of the 2-3 per shift he had only for himself when he was on ECMO. He is tolerating being just on the ventilator. They are able to do less frequent pupil checks and labs, so hopefully he’ll get better rest. He is still on Dilaudid for pain, a muscle relaxant to help his muscles relax, and another medication called Gabapentin for his teeth grinding (which the nurse thought was helping).
This morning: Seth had a good night. His nurse said that she had to hold his BP med through the night because it was on the lower side. Only this morning did she have to give him some after he had had his bath. He feels warm, but his highest temp last night was 37.4. There is not a chest xray ordered today. The nurse said they may not do it every day now. They had to when he was on ECMO to check his cannula. His Heparin has been off since yesterday evening because of the PEG tube procedure today (this will be in place of his NG tube), but the plan is to resume it after that.
We are planning on meeting with the neurologists today to go over his MRI results.
Happy to report there is not much to report!
Today is a day that the Lord hath made, let us rejoice and be glad in it! We will conquer whatever questions, uncertainties, and little giants we have to today. God is on our side, and loves us all ❤️!
Pray for….
-Clear answers where to send Seth after the ICU
-Clarity about his MRI results
-Rest and healing for Seth’s brain and body
-Continued management of his BP
-Peace for his family knowing that God is the one in control of everything.
Aunt Kerry
Ellis’ update:
Ellis is on a continuous EEG monitor and the results are almost the same as yesterday – still instability in the left side and some of the back of his brain. He is very sedated and has been otherwise stable for the past 24 hours since he was transferred here. They want to do a lumbar puncture on him to get more definitive answers about what is going on in his brain, but he needs to have been seizure-free for 48 hours before they do that procedure. A CT scan is also a possibility soon. The plan is to begin lowering his sedation which would complete the 48 hours of brain rest – but that might depend on any seizures between now and then.
Pray for:
-No more seizures
-A lumbar puncture able to be done
-Continued rest for his brain
-Pray for his brother, Jesse, as he is having a hard time.
-Pray for the 1 year old with heart problems that Erin met
-Pray for the 2 month old baby in the bed next to Ellis (this is a government hospital and so he doesn’t have a private room).
I greatly appreciate all the messages that are there when I wake up, throughout the day, and that come in as I lay down my head. These keep us strong and our eyes upon Jesus. This one was sent to me this morning. It doesn’t only apply if you are sitting next to a loved one in the hospital; it’s for whatever you may be going through, the smallest worry or the greatest despair.
“The peace of God be with you today. Waiting. Patiently waiting. God is there. He knows. He sees. He hears. He loves. He saves. 🤍
John 16:33 I have told you these things, so that in me you may have peace. In this world you will have trouble. But take heart! I have overcome the world.”
-Darcy
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