Nothing to report on Seth, he had a good day and night. We’ll post an update on him later. In the meantime, an update on our 11 year old cousin Ellis. We appreciate your prayers for him as well.
From Erin:
5:50pm update – We met with the attending neurologist, Dr Sindhu today. Ellis has been on a continuous EEG nonstop that no seizures had been detected on during the night. Once a day they do a more thorough EEG which they did on Ellis at lunch time. In the last ten minutes of the 2 hour scan they detected a seizure. It was what they call an electrographic seizure and not a clinical one, which means it couldn’t be seen in him physically but was detected in his brain. So our 48 hour wait time for a lumbar puncture unfortunately restarts and Ellis has to remain as is, with a few adjustments to his medication, over the weekend. Some of his antiseizure meds are also sedatives so he will remain sedated. The good news, though, is that his seizures have lessened in frequency and severity. A lumbar puncture test will be able to tell if his brain is suffering from infection or inflammation. Inflammation can be treated with steroids but they cannot give that if there is infection. Which we cannot know without a lumbar puncture. So in the meantime we just wait and pray.
Pray for:
-continued rest for Ellis’s brain
-No more seizures
-Patience.
Our pediatrician warned us in the very beginning to expect ups and downs, that this would be a marathon and not a sprint. Reuben and I have both run marathons and we can both tell you this is more like a long-term endurance race (that you never signed up for). If you look at an EEG reading, there are lots of little ups and downs. The neurologists are most concerned with the bigger spikes – the greater peaks and the valleys. Those irregularities are the seizure activity. Pray for those peaks and valleys to be straightened out and levelled.
“The path of the righteous is level; you, the Upright One, make the way of the righteous smooth.” -Isaiah 26:7
Benjamin and Ellis in the go kart when they came to visit -HC
Leave a Reply to Diann Graham Cancel reply