Darcy now has privileges to take Seth to therapy sessions or go out of his room without a nurse or tech coming with us. Now we can spend more time outside in the Colorado fresh air!
After a long 3 day weekend with no classes scheduled, we were ready to get our Monday going…
9 am- PT – Tilt chair to get Seth upright. Unfortunately, his BP was too high so he couldn’t proceed.
10:30am-OT – Hands on learning stretching techniques.
11am- Speech – Worked on a system to answer questions, ie using his eyes or his foot to the left for ‘yes’ or to the right for ‘no’. When shown pictures, he whispered the correct answers, ie, our bunny’s picture, he whispered, Waffle and his uncle’s picture he whispered, Jason. Yay, Seth!
1-3 pm – Rest
3pm – OT – Worked on tracking and decision making. Seth was tired but he gave it a good try.
Communicating with us whether by his faint whispers, moving his leg, or tracking with his eyes are extremely exhaustive for him. Fortitude will be the word of the week for him. It means courage shown by somebody who is suffering great pain or facing great difficulties-that certainly describes him!
One of the occupational therapists who is teaching us some intense stretches to do with him, said that Seth feels like “the world is coming at you.”
And to be honest, the world IS coming at you in ways that will affect your body and soul. I pray you have the fortitude to not only endure it physically but remain rooted in the promises that God offers grace, mercy and a hope that can’t be found in anything else.
Specific prayers:
- Increased awareness for Seth and healing of his body.
- Successful surgery to implant the Intrathecal Baclofen pump on Thursday.
- For Tom who’s got the “world coming at him” with a diagnosis of lung cancer. This Wednesday is testing so please pray for him and his family as they go though this difficult time and face the treatment ahead.
-Darcy
Pix of Seth in Malaysia
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