BIG Bold prayers needed for Seth!
It’s been a while since my last update as we’ve had a lot of unknowns and challenges that I haven’t had the brain capacity to put them all in an update. As a friend mentioned, it’s so much easier to write good news and progress than struggles and new complications.
The last update was that Seth had a blood patch to stop a CSF leak on 8/27. On 8/30 the catheter site of the Baclofen pump had filled up yet again and complained of his neck and head hurting. Along with a fever, these are symptoms of possible meningitis. Antibiotics were started.
On 8/31, Seth was transferred to Swedish hospital neuro ICU for monitoring and possible surgery to remove the Baclofen pump if that was the source of infection and why the catheter site continues to fill.
9/1- Still in ICU, but feeling better, fever and WBC had gone down. Surgery is postponed due to the meningitis not being confirmed yet and if we can avoid a surgery that would be best.
9/2 – Fluid drained again and samples taken for Beta 2 Transferrin (CSF) and meningitis (still pending). Moved to 7th Floor neuro unit. The next few days were LONG and sleepless and the care wasn’t up to the standards we had at Craig.
9/5- Cultures for meningitis are still “culturing” but we were finally able to go back to Craig! Praise the Lord!
9/6 – Midnight-Seth started complaining of head and neck aches again. At 4:30am, the symptoms persisted and was accompanied by high blood pressure 180/107 and 101.6 fever. At 10:45am, BP was 160/91 and 103.6 fever and nausea. Unfortunately, the WBC are on the rise again. Yesterday, the antibiotics were changed so the doctor changed them back to see if that is the issue.
As of writing this, we are waiting for the primary on-call doctor’s opinion on all of this and if we need to go back to the ICU.
Of course, in between all of this, there has been anxiousness, uncomfortableness, sleeplessness, miscommunication, no communication, and lab results that take forever. He has missed a week of therapies which haven’t helped him physically or mentally, too.
Ending on a positive note, Benjamin turned 25 this week. We know that it was a far from ideal way to spend his birthday, but I hope he knows what an incredible son, brother and friend he is and he is VERY much loved to infinity and back.
Kerry and Jason were here last weekend when all of this started. We were amazed by a beautiful double rainbow which reminds us that God is here with us in this place. One of the nights that Dave spent the night, Seth woke up and called for Ben. Dave got up and said, “I am staying with you.” Seth responded, “That’s all I need.” I’m comforted that Seth knows he is safe and surrounded by love in these extremely difficult days. I pray for all of you, that you know that Jesus is “all you need” too.
Specific prayers include healing of symptoms and wise decisions from each doctor over his care. We continue to need BIG bold prayers for miracles on top of miracles for Seth’s healing and recovery.
-Darcy
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