Because Seth is doing so well, today they are passing Stage 9 & going to Stage 10 of weaning off the ventilator. Five days ago, he was on Step 2 so we are thankful he’s always been an overachiever!
This morning a few of us went to friend, Sammy’s graduation at ASU. To be honest, as happy and proud as I am for him and his future, my heart was sad because a month ago, we disenrolled Seth just weeks from the end of his freshman year at Grand Canyon University. All that went through my head was what Seth’s future was going to look like and would he be ever be able to have this experience that others were joyously celebrating today. I had a bit of a meltdown in the car on the way back and even though Kerry was as kind as could be to ask me what’s wrong, I responded in a snappy way (being tired didn’t help).
It was quiet after that, which made me notice her radio was quietly playing Christian music. I’m not sure if she or Ben heard it but it was the ending of a hymn with the comforting lyrics, “It is Well.. It is Well.. With My Soul.” I know that was a God moment- offered to remind me that God is not only with Seth but with me, and our family.
On another side note, my friend sent me a picture of a penny she found on a hike. Just another little reminder of “In God we trust” 🙂
Specific prayers:
-Continued success of weaning off ventilator
-For Seth to start responding to us
Darcy
Update for Seth’s cousin, Ellis in Malaysia:
His tube is out! He has a mask and a CPAP machine now which will help him transition between the ventilator and fully breathing on his own. He will be on this for a couple of days, slowly tapering him off.
This update comes with a plot twist – results from a test done two weeks ago (at Island Hospital) just came in and Ellis tested positive for Scrub Typhus. This is a tick-borne disease in SE Asia. The doctors would have never guessed this and it could be what triggered the encephalitis. Since the test was from 2 weeks ago, it is possible he no longer has an active infection, but they are going to treat him with the antibiotics that can treat this out of an abundance of caution. We’ve lived here 14 years and I’ve never been warned or concerned about ticks here!
Pray:
-For a smooth, uneventful (in a good way) next few days.
-As he comes off his sedation. So far he has been responding well, but we don’t know if or how much brain damage he may have suffered.
-For full brain/body connection + restoration
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